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Impact of severe polyhandicap cared for at home on French informal caregivers' burden: a cross-sectional study.

Identifieur interne : 000179 ( Main/Exploration ); précédent : 000178; suivant : 000180

Impact of severe polyhandicap cared for at home on French informal caregivers' burden: a cross-sectional study.

Auteurs : Marie-Christine Rousseau [France] ; Karine Baumstarck [France] ; Maria Valkov [France] ; Agnés Felce [France] ; Catherine Brisse [France] ; Sherezad Khaldi-Cherif [France] ; Anderson Loundou [France] ; Pascal Auquier [France] ; Thierry Billette De Villemeur [France]

Source :

RBID : pubmed:32014871

Descripteurs français

English descriptors

Abstract

OBJECTIVES

Polyhandicap (PLH), defined by a combination of profound intellectual impairment and serious motor deficits, is a severe condition with complex disabilities. In France, care of the large majority of PLH individuals is managed in specialised rehabilitation centres or residential facilities, but some of PLH individuals are cared for at home. The aims of this study were to assess the self-perceived burden among informal caregivers of PLH individuals and to identify potential determinants of this burden.

DESIGN

Cross-sectional study (Neuropaediatric Department, Trousseau Hospital, Paris, France).

SETTINGS

PLH children were recruited from a specialised paediatric/neurological department.

PARTICIPANTS

The selection criteria of caregivers were age above 18 years and being the PLH individual's next of kin.

OUTCOMES MEASURES

From March 2015 to December 2016, data were collected from the caregivers, including sociodemographical data, health status, psycho-behavioural data (quality of life, mood disorders and coping) and self-perceived burden. In addition, the health status of the PLH individual was collected. Relationships between the burden scores and potential determinants were tested (correlations coefficients, Mann-Whitney tests, generalised estimating equations models).

RESULTS

Eighty-four children were eligible; 77 families returned their questionnaire. The informal caregivers of PLH children experienced a high level of perceived burden (scores ranged from 55±20 to 81±12). Eighty per cent of them had more than 5 hours of daily caregiving and 51% of them had to get up more than twice during the night. The main factors associated with caregiver burden were age, financial issues, health status, daily care and coping strategies. The patients' health status was not associated with caregiver burden.

CONCLUSIONS

Some of the caregiver burden determinants might be modifiable. These findings should help healthcare workers and health-decision makers implement specific and appropriate interventions.

TRIAL REGISTRATION NUMBER

NCT02400528.


DOI: 10.1136/bmjopen-2019-032257
PubMed: 32014871
PubMed Central: PMC7045096


Affiliations:

Links toward previous steps (curation, corpus...)

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<p>
<b>OBJECTIVES</b>
</p>
<p>Polyhandicap (PLH), defined by a combination of profound intellectual impairment and serious motor deficits, is a severe condition with complex disabilities. In France, care of the large majority of PLH individuals is managed in specialised rehabilitation centres or residential facilities, but some of PLH individuals are cared for at home. The aims of this study were to assess the self-perceived burden among informal caregivers of PLH individuals and to identify potential determinants of this burden.</p>
</div>
<div type="abstract" xml:lang="en">
<p>
<b>DESIGN</b>
</p>
<p>Cross-sectional study (Neuropaediatric Department, Trousseau Hospital, Paris, France).</p>
</div>
<div type="abstract" xml:lang="en">
<p>
<b>SETTINGS</b>
</p>
<p>PLH children were recruited from a specialised paediatric/neurological department.</p>
</div>
<div type="abstract" xml:lang="en">
<p>
<b>PARTICIPANTS</b>
</p>
<p>The selection criteria of caregivers were age above 18 years and being the PLH individual's next of kin.</p>
</div>
<div type="abstract" xml:lang="en">
<p>
<b>OUTCOMES MEASURES</b>
</p>
<p>From March 2015 to December 2016, data were collected from the caregivers, including sociodemographical data, health status, psycho-behavioural data (quality of life, mood disorders and coping) and self-perceived burden. In addition, the health status of the PLH individual was collected. Relationships between the burden scores and potential determinants were tested (correlations coefficients, Mann-Whitney tests, generalised estimating equations models).</p>
</div>
<div type="abstract" xml:lang="en">
<p>
<b>RESULTS</b>
</p>
<p>Eighty-four children were eligible; 77 families returned their questionnaire. The informal caregivers of PLH children experienced a high level of perceived burden (scores ranged from 55±20 to 81±12). Eighty per cent of them had more than 5 hours of daily caregiving and 51% of them had to get up more than twice during the night. The main factors associated with caregiver burden were age, financial issues, health status, daily care and coping strategies. The patients' health status was not associated with caregiver burden.</p>
</div>
<div type="abstract" xml:lang="en">
<p>
<b>CONCLUSIONS</b>
</p>
<p>Some of the caregiver burden determinants might be modifiable. These findings should help healthcare workers and health-decision makers implement specific and appropriate interventions.</p>
</div>
<div type="abstract" xml:lang="en">
<p>
<b>TRIAL REGISTRATION NUMBER</b>
</p>
<p>NCT02400528.</p>
</div>
</front>
</TEI>
<pubmed>
<MedlineCitation Status="MEDLINE" Owner="NLM">
<PMID Version="1">32014871</PMID>
<DateCompleted>
<Year>2021</Year>
<Month>02</Month>
<Day>10</Day>
</DateCompleted>
<DateRevised>
<Year>2021</Year>
<Month>02</Month>
<Day>10</Day>
</DateRevised>
<Article PubModel="Electronic">
<Journal>
<ISSN IssnType="Electronic">2044-6055</ISSN>
<JournalIssue CitedMedium="Internet">
<Volume>10</Volume>
<Issue>1</Issue>
<PubDate>
<Year>2020</Year>
<Month>02</Month>
<Day>02</Day>
</PubDate>
</JournalIssue>
<Title>BMJ open</Title>
<ISOAbbreviation>BMJ Open</ISOAbbreviation>
</Journal>
<ArticleTitle>Impact of severe polyhandicap cared for at home on French informal caregivers' burden: a cross-sectional study.</ArticleTitle>
<Pagination>
<MedlinePgn>e032257</MedlinePgn>
</Pagination>
<ELocationID EIdType="doi" ValidYN="Y">10.1136/bmjopen-2019-032257</ELocationID>
<Abstract>
<AbstractText Label="OBJECTIVES">Polyhandicap (PLH), defined by a combination of profound intellectual impairment and serious motor deficits, is a severe condition with complex disabilities. In France, care of the large majority of PLH individuals is managed in specialised rehabilitation centres or residential facilities, but some of PLH individuals are cared for at home. The aims of this study were to assess the self-perceived burden among informal caregivers of PLH individuals and to identify potential determinants of this burden.</AbstractText>
<AbstractText Label="DESIGN">Cross-sectional study (Neuropaediatric Department, Trousseau Hospital, Paris, France).</AbstractText>
<AbstractText Label="SETTINGS">PLH children were recruited from a specialised paediatric/neurological department.</AbstractText>
<AbstractText Label="PARTICIPANTS">The selection criteria of caregivers were age above 18 years and being the PLH individual's next of kin.</AbstractText>
<AbstractText Label="OUTCOMES MEASURES">From March 2015 to December 2016, data were collected from the caregivers, including sociodemographical data, health status, psycho-behavioural data (quality of life, mood disorders and coping) and self-perceived burden. In addition, the health status of the PLH individual was collected. Relationships between the burden scores and potential determinants were tested (correlations coefficients, Mann-Whitney tests, generalised estimating equations models).</AbstractText>
<AbstractText Label="RESULTS">Eighty-four children were eligible; 77 families returned their questionnaire. The informal caregivers of PLH children experienced a high level of perceived burden (scores ranged from 55±20 to 81±12). Eighty per cent of them had more than 5 hours of daily caregiving and 51% of them had to get up more than twice during the night. The main factors associated with caregiver burden were age, financial issues, health status, daily care and coping strategies. The patients' health status was not associated with caregiver burden.</AbstractText>
<AbstractText Label="CONCLUSIONS">Some of the caregiver burden determinants might be modifiable. These findings should help healthcare workers and health-decision makers implement specific and appropriate interventions.</AbstractText>
<AbstractText Label="TRIAL REGISTRATION NUMBER">NCT02400528.</AbstractText>
<CopyrightInformation>© Author(s) (or their employer(s)) 2020. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.</CopyrightInformation>
</Abstract>
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<Author ValidYN="Y">
<LastName>Rousseau</LastName>
<ForeName>Marie-Christine</ForeName>
<Initials>MC</Initials>
<Identifier Source="ORCID">0000-0002-8065-8667</Identifier>
<AffiliationInfo>
<Affiliation>Hôpital San Salvadour, Assistance Publique - Hôpitaux de Paris, Paris, Île-de-France, France marie-christine.rousseau@aphp.fr.</Affiliation>
</AffiliationInfo>
<AffiliationInfo>
<Affiliation>EA 3279, Self-perceived Health Assessment Research Unit, Aix-Marseille Universite, Marseille, France.</Affiliation>
</AffiliationInfo>
</Author>
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<LastName>Baumstarck</LastName>
<ForeName>Karine</ForeName>
<Initials>K</Initials>
<AffiliationInfo>
<Affiliation>EA 3279, Self-perceived Health Assessment Research Unit, Aix-Marseille Universite, Marseille, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Valkov</LastName>
<ForeName>Maria</ForeName>
<Initials>M</Initials>
<AffiliationInfo>
<Affiliation>Hôpital San Salvadour, Assistance Publique - Hôpitaux de Paris, Paris, Île-de-France, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Felce</LastName>
<ForeName>Agnés</ForeName>
<Initials>A</Initials>
<AffiliationInfo>
<Affiliation>Hôpital Marin d'Hendaye, Assistance Publique Hopitaux de Paris, Paris, Île-de-France, France.</Affiliation>
</AffiliationInfo>
</Author>
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<LastName>Brisse</LastName>
<ForeName>Catherine</ForeName>
<Initials>C</Initials>
<AffiliationInfo>
<Affiliation>Comité d'Études, d'Éducation et de Soins Auprès des Personnes Polyhandicapées, Paris, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Khaldi-Cherif</LastName>
<ForeName>Sherezad</ForeName>
<Initials>S</Initials>
<AffiliationInfo>
<Affiliation>UGECAM Ile de France, Paris, Île-de-France, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Loundou</LastName>
<ForeName>Anderson</ForeName>
<Initials>A</Initials>
<AffiliationInfo>
<Affiliation>EA 3279, Self-perceived Health Assessment Research Unit, Aix-Marseille Universite, Marseille, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Auquier</LastName>
<ForeName>Pascal</ForeName>
<Initials>P</Initials>
<AffiliationInfo>
<Affiliation>EA 3279, Self-perceived Health Assessment Research Unit, Aix-Marseille Universite, Marseille, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Billette de Villemeur</LastName>
<ForeName>Thierry</ForeName>
<Initials>T</Initials>
<AffiliationInfo>
<Affiliation>Hôpital de La Roche Guyon, Assistance Publique - Hopitaux de Paris, Paris, Île-de-France, France.</Affiliation>
</AffiliationInfo>
<AffiliationInfo>
<Affiliation>Pathologie du développement, Sorbonne Université, UPMC, GRC ConCer-LD, Paris, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<CollectiveName>French Polyhandicap Group</CollectiveName>
</Author>
</AuthorList>
<Language>eng</Language>
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<DataBank>
<DataBankName>ClinicalTrials.gov</DataBankName>
<AccessionNumberList>
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<ArticleDate DateType="Electronic">
<Year>2020</Year>
<Month>02</Month>
<Day>02</Day>
</ArticleDate>
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<Country>England</Country>
<MedlineTA>BMJ Open</MedlineTA>
<NlmUniqueID>101552874</NlmUniqueID>
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<MeshHeadingList>
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<DescriptorName UI="D000223" MajorTopicYN="Y">Adaptation, Psychological</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D000293" MajorTopicYN="N">Adolescent</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D000328" MajorTopicYN="N">Adult</DescriptorName>
</MeshHeading>
<MeshHeading>
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<QualifierName UI="Q000706" MajorTopicYN="Y">statistics & numerical data</QualifierName>
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<MeshHeading>
<DescriptorName UI="D002648" MajorTopicYN="N">Child</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D002675" MajorTopicYN="N">Child, Preschool</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D017281" MajorTopicYN="Y">Cost of Illness</DescriptorName>
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<MeshHeading>
<DescriptorName UI="D003430" MajorTopicYN="N">Cross-Sectional Studies</DescriptorName>
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<MeshHeading>
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<MeshHeading>
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<MeshHeading>
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<QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName>
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<Keyword MajorTopicYN="Y">health status</Keyword>
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<Keyword MajorTopicYN="Y">polyhandicap</Keyword>
<Keyword MajorTopicYN="Y">psychobehavioural</Keyword>
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<CoiStatement>Competing interests: None declared.</CoiStatement>
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<ForeName>Moustafa</ForeName>
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</ArticleIdList>
<ReferenceList>
<Reference>
<Citation>PLoS One. 2019 Feb 4;14(2):e0211640</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">30716093</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>Disabil Rehabil. 2010;32(20):1666-72</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">20170278</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>Cad Saude Publica. 2019 Jul 04;35(6):e00157918</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">31291429</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>Int Q Community Health Educ. 2019 Apr;39(3):147-153</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">30602336</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>Arch Pediatr. 1998 Jul;5(7):739-44</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">9759272</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>Int J Geriatr Psychiatry. 2002 Feb;17(2):184-8</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">11813283</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>Soc Psychiatry Psychiatr Epidemiol. 2005 Nov;40(11):899-904</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">16245190</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>J Clin Endocrinol Metab. 2011 Apr;96(4):964-71</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">21209028</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>J Neurooncol. 2016 Aug;129(1):155-64</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">27300523</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>J Rehabil Res Dev. 2016;53(6):681-692</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">27997670</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>Int J Behav Med. 1997;4(1):92-100</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">16250744</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>J Clin Nurs. 2018 Dec;27(23-24):4321-4330</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">29964322</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>Brain Inj. 2015;29(7-8):837-42</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">25950262</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>Int Psychogeriatr. 2019 Mar;31(3):435</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">30915944</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>J Palliat Med. 2015 Dec;18(12):1048-53</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">26484426</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>J Nurs Scholarsh. 2003;35(1):27-32</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">12701523</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>J Spec Pediatr Nurs. 2016 Jul;21(3):147-57</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">27319801</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>Disabil Rehabil. 2019 Jan 29;:1-8</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">30696289</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>J Intellect Dev Disabil. 2011 Mar;36(1):73-9</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">21314595</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>PLoS One. 2018 Jul 6;13(7):e0199986</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">29979745</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>Dev Med Child Neurol. 1992 Nov;34(11):979-84</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">1426688</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>Res Dev Disabil. 2017 Feb;61:138-150</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">28087202</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>Soc Sci Med. 1999 May;48(9):1259-69</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">10220024</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>J Clin Oncol. 2005 Oct 1;23(28):6899-907</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">16129849</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>PLoS One. 2016 Sep 07;11(9):e0162294</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">27603670</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>Res Nurs Health. 1992 Aug;15(4):271-83</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">1386680</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>Br J Psychiatry. 1992 Dec;161:797-801</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">1483165</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>Eur J Cancer Care (Engl). 2018 Jan;27(1):</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">27271848</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>Child Care Health Dev. 2017 Jul;43(4):518-526</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">28156014</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>J Am Geriatr Soc. 2014 Jun;62(6):1082-90</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">24803020</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>Br J Psychiatry. 1987 Mar;150:285-92</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">3311267</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>Ment Retard. 2006 Dec;44(6):405-17</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">17132035</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>J Am Geriatr Soc. 2019 Jul;67(7):1345-1352</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">30946495</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>Pediatrics. 2005 Jun;115(6):e626-36</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">15930188</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>Compr Psychiatry. 2017 Apr;74:70-79</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">28110224</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>Dev Med Child Neurol. 2017 Jul;59(7):732-737</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">28432687</ArticleId>
</ArticleIdList>
</Reference>
</ReferenceList>
</PubmedData>
</pubmed>
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<name sortKey="Baumstarck, Karine" sort="Baumstarck, Karine" uniqKey="Baumstarck K" first="Karine" last="Baumstarck">Karine Baumstarck</name>
<name sortKey="Billette De Villemeur, Thierry" sort="Billette De Villemeur, Thierry" uniqKey="Billette De Villemeur T" first="Thierry" last="Billette De Villemeur">Thierry Billette De Villemeur</name>
<name sortKey="Billette De Villemeur, Thierry" sort="Billette De Villemeur, Thierry" uniqKey="Billette De Villemeur T" first="Thierry" last="Billette De Villemeur">Thierry Billette De Villemeur</name>
<name sortKey="Brisse, Catherine" sort="Brisse, Catherine" uniqKey="Brisse C" first="Catherine" last="Brisse">Catherine Brisse</name>
<name sortKey="Felce, Agnes" sort="Felce, Agnes" uniqKey="Felce A" first="Agnés" last="Felce">Agnés Felce</name>
<name sortKey="Khaldi Cherif, Sherezad" sort="Khaldi Cherif, Sherezad" uniqKey="Khaldi Cherif S" first="Sherezad" last="Khaldi-Cherif">Sherezad Khaldi-Cherif</name>
<name sortKey="Loundou, Anderson" sort="Loundou, Anderson" uniqKey="Loundou A" first="Anderson" last="Loundou">Anderson Loundou</name>
<name sortKey="Rousseau, Marie Christine" sort="Rousseau, Marie Christine" uniqKey="Rousseau M" first="Marie-Christine" last="Rousseau">Marie-Christine Rousseau</name>
<name sortKey="Valkov, Maria" sort="Valkov, Maria" uniqKey="Valkov M" first="Maria" last="Valkov">Maria Valkov</name>
</country>
</tree>
</affiliations>
</record>

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